Office of the Assistant Secretary for Planning & Evaluation
	Disability, Aging, and Long-Term Care Policy

Links to Other Information Related to Disability, Aging and Long-Term Care

This section provides links to information--including documents, websites and audio material--from other sites that might assist you with disability, aging or long-term care issues. The links will be checked randomly, however DALTCP only guarantees that they are correct as they are added to this section. Please contact the Webmaster if you find a site that no longer exists, or if you know of other sites which could be added.

Remember, the Site Index section includes an alphabetic list of keywords you can choose to find information that is referenced throughout the DALTCP website.

Disclaimer: References or links from this page to other pages outside the U.S. Department of Health and Human Services (HHS) do not constitute any endorsement or recommendation by the Department or any of its agencies or employees. HHS is also not responsible for the contents of any pages outside our control. HHS does not endorse any product or service provided by any other organization.

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AARP Andrus Foundation
URL: http://www.andrus.org
DESCRIPTION: The AARP Andrus Foundation is committed to making a positive difference in the lives of older adults across the nation through funding aging-related research and educational grants. As one of the few grantmaking foundations continuing to focus solely on aging issues, our goal is simple; to provide the public with aging-related information that can positively impact their quality of life.

Abt Associates
URL: http://www.abtassoc.com
DESCRIPTION: Abt Associates numbers among its clients virtually every U.S. government agency, a broad cross-section of U.S. businesses and trade associations, foreign governments, numerous multi-national agencies, and foreign businesses. To governmental clients, we provide program evaluation, policy analysis, technical assistance, and program operation services. To business clients, we provide strategic planning, management consulting, organizational development, market research, new product development services, and service quality measurement and management.

Academy for Health Services Research and Health Policy
URL: http://www.ahsr.org
DESCRIPTION: In June 2000, the Alpha Center and the Association for Health Services Research merged to form the Academy for Health Services Research and Health Policy. The Academy provides a professional home and technical assistance resource for researchers and policy professionals. Committed to the vision of improving health and health care by generating new knowledge and moving knowledge into action, the Academy seeks to stimulate the development, understanding, and use of the best available health services research and health policy information by public and private decision makers.

Access is Better for Racial/Ethnic Elderly in Medicare HMOs--But Disparities Persist
AUTHORS: Steven P. Wallace, Valentine M. Villa, Vilma Enriques-Haass and Carolyn A. Mendez
DATE: May 2001
CONTACT: UCLA Center for Health Policy Research, 10911 Weyburn Avenue, Suite 300, Los Angeles, CA 90024, Website www.healthpolicy.ucla.edu, Email chpr@ucla.edu, Phone 310-794-0909, Fax 310-794-2686
DESCRIPTION:

Achieving Successful Employment Outcomes With the Use of Assistive Technology
DATE: May 1998
DESCRIPTION:
CONTACT: Region V Rehabilitation Continuing Education Program, University of Wisconsin-Stout, Menomonie, WI 54751-0790, Email davisj@uwstout.edu, Phone 715-232-1380, Fax 715-232-2251

Administration for Children and Families
URL: http://www.acf.dhhs.gov
DESCRIPTION: The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. ACF programs aim to achieve the following : families and individuals empowered to increase their own economic independence and productivity; strong, healthy, supportive communities that have a positive impact on the quality of life and the development of children; partnerships with individuals, front-line service providers, communities, American Indian tribes, Native communities, states, and Congress that enable solutions which transcend traditional agency boundaries; services planned, reformed, and integrated to improve needed access; and a strong commitment to working with people with developmental disabilities, refugees, and migrants to address their needs, strengths, and abilities.

Administration on Aging
URL: http://www.aoa.gov
DESCRIPTION: An agency within the U.S. Department of Health and Human Services, AoA supports a nationwide aging network, providing services to the elderly, especially to enable them to remain independent. AoA supports some 240 million meals for the elderly each year, including home-delivered "meals on wheels," helps provide transportation and at-home services, supports ombudsman services for elderly, and provides policy leadership on aging issues.

Administration on Developmental Disabilities
URL: http://www.acf.dhhs.gov/programs/add
DESCRIPTION: The Administration on Developmental Disabilities ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promotes independence, productivity, and integration and inclusion into the community.

ADULTS WITH SEVERE DISABILITIES: Federal and State Approaches for Personal Care and Other Services
DATE: May 1999
CONTACT: US General Accounting Office, P.O. Box 37050, Washington, DC 20013, Website www.gao.gov, Email info@www.gao.gov, Phone 202-512-6000, Fax 202-512-6061
DESCRIPTION:

Advancing Diabetes Care
DATE: October 1999
CONTACT: Medicom International, Inc., 66 Palmer Avenue, Suite 49, Bronxville, NY 10708, Website www.MedicomInt.com, Phone 914-337-7878
DESCRIPTION:

Advice Report to the Commissioner of the Social Security Administration on the Notice of Proposed Rulemaking for the Ticket to Work and Self Sufficiency Program
AUTHORS: Ticket to Work and Work Incentives Advisory Panel
DATE: July 26, 2001
CONTACT: Social Security Administration, 400 Virginia Avenue, S.W., Suite 700, Washington, DC 20024, Website http://www.ssa.gov/work/panel/index.html, Email TWWIIAPanel@ssa.gov, Phone 202-358-6430, Fax 202-358-6440
DESCRIPTION:

Agency for Healthcare Research and Quality
URL: http://www.ahcpr.gov
DESCRIPTION: To support research designed to improve the outcomes and quality of health care, reduce its costs, address patient safety and medical errors, and broaden access to effective services. The research sponsored, conducted, and disseminated by the Agency for Healthcare Research and Quality (AHRQ) provides information that helps people make better decisions about health care.

AGENET
URL: www.agenet.com
DESCRIPTION: AgeNet is an information and referral network designed to communicate information about products and services that are important to enhancing the quality of life of older adults and their families. AgeNet.com serves older adults, their caregivers, and related professionals. We are currently offering free membership registration to attorneys interested in elder care issues. Registration provides you access to all the content and, ongoing Updates from AgeNet.

Aging in Latin America and the Caribbean
AUTHORS: Alberto Palloni, Susan DeVos and Martha Pelaez
DATE: 1999
DESCRIPTION:
CONTACT: Center for Demography and Ecology, University of Wisconsin, 1180 Observatory Drive, Madison, WI 53706-1393, Website http://www.ssc.wisc.edu/cde, Email cdepubs@ssc.wisc.edu, Phone 608-262-2182, Fax 608-262-8400

Aging in the Americas into the XXI Century
DATE: August 1998
DESCRIPTION:
CONTACT: US Department of Commerce, Bureau of the Census, Economics and Statistics Administration, Washington, DC 20233-0001

Alzheimer's Association
URL: http://www.alz.org
DESCRIPTION: The Alzheimer’s Association, a national network of chapters, is the largest national voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease. The Association also provides education and support for people diagnosed with the condition, their families, and caregivers.

Alzheimer's Caregiving Strategies
DATE: 1998
CONTACT: HealthCare Interactive, P.O. Box 19646, Minneapolis, MN 55419, Phone 888-824-3020
DESCRIPTION: This interactive program on CD-ROM is intended for caregivers of people with Alzheimer's disease and related dementias. The CD-ROM is divided into six sections. The first section explains how to effectively use the program. The second section provides basic information on dementia, including symptoms, causes, diagnosis, treatment, and disease progression. Caregiving is the focus of the third section; topics discussed include enhancing caregiving skills, managing caregiver stress, and caring of the caregiver. In the fourth and fifth sections, users determine the functional level of the person they are caring for and receive caregiving tips based on functional ability. An assessment scale ranges from one to six, with one representing normal functioning, and six representing a bedridden person who requires complete care. To determine functional level, caregivers can view videos of patients at each level and read about common symptoms. The final section includes advice from professionals and caregivers on issues such as behavior management and nursing home placement.

Alzheimer's Disease: Estimates of Prevalence in the United States
DATE: January 28, 1998
CONTACT: Website http://www.gao.gov/AIndexFY98/abstracts/he98016.htm
DESCRIPTION:

American Association of Health Plans
URL: http://www.aahp.org
DESCRIPTION: The American Association of Health Plans (AAHP) is the national trade association representing more than 1,000 health maintenance organizations, preferred provider organizations, point-of-service plans, and other similar health plans that care for more than 140 million Americans. AAHP represents its member plans on a broad array of issues including legislative and regulatory matters in Washington, in the states, before the television, radio, and print media, and conducts comprehensive research on a wide range of quality and policy-related issues. AAHP also has an extensive roster of educational programs, including the Annual Institute and Display Forum, the Executive Leadership Program and Minority Management Training and Outreach Program.

American Association of Homes and Services for the Aging
URL: http://aahsa.org
DESCRIPTION: AAHSA represents non-for-profit organizations dedicated to providing high-quality health care, housing and services to the nation's elderly. Its membership consists of over 5,000 not-for-profit nursing homes, continuing care retirement communities, senior housing facilities, assisted living and community services. AAHSA organizations serve more than one million older persons of all income levels, creed and races.

American Association of Retired Persons
URL: http://www.aarp.org
DESCRIPTION: Founded in 1958 by retired California educator, Dr. Ethel Percy Andrus, AARP today represents more than 34 million members. Over half of our members are working, either full or part-time, while the remainder are fully retired. AARP's vision is to excel as a dynamic presence in every community, shaping and enriching the experience of aging for each member and for society. To bring that vision to life, AARP focuses its efforts and resources in four areas: (1) Health and Wellness, (2) Economic Security and Work, (3) Long-term Care and Independent Living, and (4) Personal Enrichment.

American Association of University Affiliated Programs for Persons with Developmental Disabilities
URL: http://www.aauap.org/
DESCRIPTION: AAUAP is a national association. UAPs are located at major universities and teaching hospitals in all states, the District of Columbia, the U.S. Virgin Islands, Puerto Rico and territories.UAPs target and engage in activities to support the independence, productivity, integration and inclusion into the community of individuals with developmental disabilities and their families.

American College of Health Care Administrators
URL: http://www.achca.org
DESCRIPTION: About ACHCA ACHCA is the professional society for nearly 6,000 administrators in long-term care. ACHCA offers excellent educational programming, and career development through certification, networking, opportunities, and cutting edge communications. Members enhance their professional development primarily through education through the continuum of health care administration with an emphasis on long-term care to improve the quality of care provided to those they serve.

American Community Survey: 1999
DATE: 2001
CONTACT: U.S. Census Bureau, Economics and Statistics Administration, Website www.census.gov/acs/www, Email acs@census.gov, Phone 888-456-7215
DESCRIPTION: To help your community make strategic plans for its future, the American Community Survey (ACS) CD-ROM will provide a "video" of how your community is changing, instead of the "snapshot" that the decennial census provides once every 10 years. The ACS provides accurate, timely, and comparable information for making decisions such as: tracking the well-being of children, families, and the elderly; determining where to locate new schools, hospitals, and highways; showing a company that the town has the workforce it needs; and evaluating programs such as welfare and workforce diversification.

American Health Care Association
URL: http://www.ahca.org
DESCRIPTION: AHCA is committed to developing necessary and reasonable public policies which balance economic and regulatory principles to support quality care and quality of life, and is dedicated to professionalism and ethical behavior among all who provide long-term care.

American Health Information Management Association
URL: http://www.ahima.org
DESCRIPTION: The American Health Information Management Association (AHIMA) is the dynamic professional association that represents more than 40,000 specially educated health information management professionals who work throughout the health care industry. Health information management professionals serve the healthcare industry and the public by managing, analyzing, and utilizing data vital for patient care--and making it accessible to healthcare providers when it is needed most.

American Medical Specialty Organization, Inc.
URL: http://www.amso.com
DESCRIPTION: The American Medical Specialty Organization, Inc., (AMSO) has created a Managed Care Forum web page with a weekly health care related poll question. The polling question will be formatted to elicit a yes or no response, with a comments section for additional commentary. Each weekly poll will close on Monday at 11:59p.m., with the results posted weekly at the web page and in various discussion groups. If you have a poll question that you would like to be considered, email me directly or send the question in the email comments section of the web page. The purpose of this page and poll is to create a national dialog on the issues surrounding managed health care, whether you are a health care professional, executive, or a concerned health care consumer, we believe that this new medium will help you make better informed decisions about the managed care issues confronting you.

American Public Health Association
URL: http://www.apha.org
DESCRIPTION: APHA brings together researchers, health service providers, administrators, teachers, and other health workers in a unique, multidisciplinary environment of professional exchange, study, and action. APHA is concerned with a broad set of issues affecting personal and environmental health, including federal and state funding for health programs, pollution control, programs and policies related to chronic and infectious diseases, a smoke-free society, and professional education in public health. APHA actively serves the public, its members, and the public health profession through its scientific and practice programs, publications, annual meetings, awards program, educational services, and advocacy efforts.

Americans for Better Care of the Dying
URL: http://www.abcd-caring.org
DESCRIPTION: Americans for Better Care of the Dying (ABCD) is an IRS Section 501(c)(3), Washington, DC based organization dedicated the ensuring that all Americans can count on good end of life care. Our goals are to: (1) build momentum for reform, (2) explore new methods and systems for delivering care, (3) shape public policy through evidence-based understanding. We aim to accomplish these goals by focusing our efforts on fundamental reforms; such as, improved pain management, better financial reimbursement systems, enhanced continuity of care, support for family caregivers, and changes in public policy.

Americans with Disabilities Act
URL: http://www.usdoj.gov/crt/ada/adahom1.htm
DESCRIPTION: Department of Justice offers technical assistance on the ADA Standards for Accessible Design and other ADA provisions applying to businesses, non-profit service agencies, and state and local government programs; also provides information on how to file ADA complaints.

Americans with Disabilities Data
URL: http://www.census.gov/hhes/www/disable/census.html
DESCRIPTION: This project analyzed the 1990 Decennial Census and was jointly funded by DALTCP and the Census Bureau. The results are presented in tables, graphs, and maps.

Analysis of States' CHIP Policies Affecting Children with Special Health Care Needs
AUTHORS: Harriette B. Fox, Regina R. Graham, Margaret A. McManus and Christine Y. Chen
DATE: April 1999
CONTACT: Fox Health Policy Consultants, 750 17th Street, N.W., Suite 1025, Washington, DC 20006-4607, Website www.mchpolicy.org, Email cchen@foxhealth.com, Phone 202-223-1500, Fax 202-496-9067
DESCRIPTION:

Arc
URL: http://www.thearc.org
DESCRIPTION: x

Assistance From Family Members, Friends, Paid Care Givers, and Volunteers in the Care of Terminally Ill Patients
AUTHORS: Ezekiel J. Emanuel, Diane L. Fairclough, Julia Slutsman, Hillel Alpert, DeWitt Baldwin and Linda L. Emanuel
DATE: September 23, 1999
CONTACT: The Commonwealth Fund, One East 75th Street, New York, NY 10021-2692, Website http://www.cmwf.org, Email cmwf@cmwf.org, Phone 212-606-3800, Fax 212-606-3500
DESCRIPTION:

Assisted Living Federation of America
URL: http://www.alfa.org
DESCRIPTION: The Assisted Living Federation of America (ALFA) represents over 7,000 for-profit and not-for-profit providers of assisted living, continuing care retirement communities, independent living and other forms of housing and services. Founded in 1990 to advance the assisted living industry and enhance the quality of life for the approximately one million consumers it serves, ALFA broadened its membership in 1999 to embrace the full range of housing and care providers who share ALFA's consumer-focused philosophy of care.

Assisted Living Industry in Ohio
AUTHORS: Rebecca L. Utz
DATE: November 1999
CONTACT: Scripps Gerontology Center, Miami University, Oxford, OH 45056, Website http://www.cas.muohio.edu/~scripps, Phone 513-529-2914, Fax 513-529-1476
DESCRIPTION:

Assisted Living State Regulatory Review 2001
AUTHORS: Julie Cheeka
DATE: February 2001
CONTACT: National Center for Assisted Living, 1201 L Street, N.W., Washington, DC 20005-4014, Website http://www.ncal.org, Phone 202-842-4444, Fax 202-842-3860
DESCRIPTION:

B

Back to School on Civil Rights--Advancing the Federal Government To Leave No Child Behind
DATE: January 25, 2000
CONTACT: National Council on Disability, 1331 F Street, N.W., Suite 1050, Washington, DC 20004-1107, Website http://www.ncd.gov, Phone 202-272-2004, Fax 202-272-2022
DESCRIPTION:

Back To School: A Health Care Strategy For Youth
AUTHORS: James A. Morone, Elizabeth H. Kilbreth and Kathryn M. Langwell
DATE: 2001
CONTACT: George Washington University, Center for Health and Health Care in Schools, Website www.healthinschools.org
DESCRIPTION:

Baltimore Region Elderly Activity Patterns and Travel Characteristics Study
DATE: 1999
CONTACT: The National Transit Resource Center, 1341 G Street, N.W., Suite 600, Washington, DC 20005, Website www.ctaa.org/ntrc, Email resources@ctaa.org, Phone 1-800-527-8279, Fax 202-737- 9197
DESCRIPTION:

Berkeley Center for Independent Living
URL: http://www.cilberkeley.org
DESCRIPTION: The Center for Independent Living (CIL) is a national leader in helping people with disabilities live independently and become productive, fully participating members of society. The staff and board, most of whom have disabilities, are strongly committed to supporting others in their efforts towards self sufficiency. Since 1972 we have opened doors for over 200,000 people, who were traditionally viewed only as "patients", to help them leave institutions, set up independent living situations and hold jobs.

Board and Care Study
URL: http://reports/b&cweb.htm
DESCRIPTION: This data set gives information from interviews that included 509 operators, 1138 staff and 3257 residents from 385 licensed and 129 unlicensed board and care homes.

Bridging the Gaps Between Medicare and Medicaid: The Case of QMBs and SLMBs
AUTHORS: Margo L. Rosenbach and JoAnn Lamphere
DATE: January 1999
CONTACT: American Association of Retired Persons, Public Policy Institute, 601 E Street, N.W., Washington, DC 20049, Website www.aarp.org, Phone 202-434-3890
DESCRIPTION:

BRIEFING NOTE: Quality Management Practices in Medicaid Managed Care
AUTHORS: Bruce E. Landon and Arnold M. Epstein
DATE: February 2000
CONTACT: The Commonwealth Fund, One East 75th Street, New York, NY 10021-2692, Website http://www.cmwf.org, Email cmwf@cmwf.org, Phone 212-606-3800, Fax 212-606-3500
DESCRIPTION:

Brookings Institution
URL: http://www.brookings.org
DESCRIPTION: In its research, The Brookings Institution functions as an independent analyst and critic, committed to publishing its findings for the information of the public. In its conferences and activities, it serves as a bridge between scholarship and public policy, bringing new knowledge to the attention of decisionmakers and affording scholars a better insight into public policy issues.

C

California's Undocumented Latino Immigrants: A Report on Access to Health Care Services
AUTHORS: Claudia L. Schur, Marc L. Berk, Cynthia D. Good and Eric N. Gardner
DATE: May 1999
CONTACT: The Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Website www.kff.org, Phone 800-656-4533
DESCRIPTION:

Can Aging Baby Boomers Avoid the Nursing Home? Long-Term Care Insurance for "Aging in Place"
AUTHORS: Barbara R. Stucki and Janemarie Mulvey
DATE: March 2000
CONTACT: American Council of Life Insurers, 1001 Pennsylvania Avenue, N.W., Washington, DC 20004-2599, Website www.acli.com, Phone 202-624-2131, Fax 202-624-2319
DESCRIPTION:

Cancer Prevention: Novel Nutrient and Pharmaceutical Developments
AUTHORS: H. Leon Bradlow, Jack Fishman and Michael P. Osborne (Editors)
DATE: November 1999
CONTACT: New York Academy of Sciences, Publications, 2 East 63rd Street, New York, NY 10021, Website www.nyas.org, Email publications@nyas.org, Phone 800-843-6927, Fax 212-888-2894
DESCRIPTION:

Can't Afford to Get Sick: A Reality for Millions of Working Americans
DATE: October 1999
CONTACT: The Commonwealth Fund, One East 75th Street, New York, NY 10021-2692, Website http://www.cmwf.org, Email cmwf@cmwf.org, Phone 212-606-3800, Fax 212-606-3500
DESCRIPTION:

Caregiver Network
URL: http://www.caregiver.on.ca
DESCRIPTION: Based in Toronto, Canada the goal of CNI is to be a national single information source to make your life as a caregiver easier. Caregiver Bulletin Board (in the Contact Us section) enables you to talk to other caregivers to find help and answers to questions. All links will grow and evolve as we accumulate more information and support from you wherever you live.

Caregiving PolicyDigest
URL: http://www.caregiver.org/pd/policy_digest.html
DESCRIPTION: This newsletter, from Family Caregiver Alliance's National Center on Caregiving, offers a fresh look at the rapidly changing environment of caregiving. Timely, relevant news reports keep you absolutely up-to-date on the latest developments in the field. Briefings on key legislation. News on innovative public programs. The latest on caregiving and long-term care policy at national and state levels. All in an easy-to-read, easy-to-access, FREE electronic newsletter delivered right to your desktop.

Caregiver: The Spiritual Journey of Love, Loss and Renewal
AUTHORS: Beth Witrogen McLeod
DATE: March 1999
CONTACT: John Wiley & Sons, Inc., 605 Third Avenue, New York, NY 10158, Website http://www.wiley.com, Phone 1-800-225-5945
DESCRIPTION:

CareGuide
URL: http://www.careguide.net
DESCRIPTION: CareGuide is a care management company dedicated to helping people at every stage of the aging process lead more comfortable, secure and independent lives. Through our national network of care managers, toll-free Support Center and Web site, CareGuide provides families with everything they need to assess, plan, manage and monitor the best care for their loved ones.

CarePathways
URL: http://www.CarePathways.com
DESCRIPTION: CarePathways.com is a World Wide Web community dedicated to optimizing a family's access to valid information and creditable services about senior care and housing options. It is their goal to educate families about the types of care options available in order to better understand what might be the best choice for aging loved ones. Access to the online databases facilitates the difficult search for home care, assisted living, retirement homes, nursing homes and other long-term care facilities. The site offers support to help families identify their older loved one's needs and care requirements in order to make sound decisions about the best senior housing and care. The site's needs assessment provides a step-by-step assessment of an individual and family's needs that serves as a starting point in the planning and decision making process.

Case-Study Investigation of Charity Care and Essential Service Provision Following Hospital Conversion to For-Profit Status
AUTHORS: Deborah J. Chollet and Adele M. Kirk
DATE: September 1999
CONTACT: American Association of Retired Persons, Public Policy Institute, 601 E Street, N.W., Washington, DC 20049, Website research.aarp.org, Phone 202-434-3890
DESCRIPTION:

Cash Assistance in Transition: The Story of 13 States
AUTHORS: Sheila R. Zedlewski, Pamela A. Holcomb and Amy-Ellen Duke
DATE: December 1998
CONTACT: The Urban Institute, 2100 M Street, N.W., Washington, DC 20037, Website http://www.urban.org, Email paffairs@ui.urban.org, Phone 202-833-7200, Fax 202-429-0687
DESCRIPTION:

Centenarians in the United States
AUTHORS: Constance A. Krach and Victoria A. Velkoff
DATE: July 1999
CONTACT: Bureau of the Census, Population Division, Washington, DC 20233, Email vvelkoff@census.gov, Phone 301-457-1371
DESCRIPTION:

Center for Accessible Technology
URL: http://www.cforat.org
DESCRIPTION: The Center for Accessible Technology (CforAT) began in 1983 as the Disabled Children's Computer Group, a cooperative effort by parents, professionals and people with disabilities to harness the emerging power of computer technology to aide children with disabilities. CforAT has grown to become a consumer-based technology resource and demonstration center for adults and children with disabilities, families, teachers, and professionals. Their purpose is to provide information and services supporting technology use that respects individual differences, encourages each person's right to make informed choices and builds the community's capacity to support the assistive technology user.

Center for Health Care Strategies
URL: http://www.chcs.org
DESCRIPTION: The Center for Health Care Strategies (CHCS) is a nonprofit, policy resource center that promotes high quality health care services for low-income populations and people with chronic illnesses and disabilities. We achieve this objective by conducting policy analysis, testing model products and providing "real world" training and technical assistance to our key audiences: purchasers of publicly-financed health care, managed care organizations and consumer groups.

Center for Health Design
URL: http://www.healthdesign.org
DESCRIPTION: This nonprofit, nonmembership organization is working to make people's lives better by demonstrating that supportive building design can enhance health and well-being. Since 1988, they have mostly focused on hospitals, doctor's offices, nursing homes, and other health care facilities, but they are also concerned with other places where people live and work. Everyday, health care and design professionals from all over the world use them as a resource. Yet, their ideas about the relationship between quality health care and the built environment are not just for professionals. They are for anyone who is a patient, resident, or visitor in a health care facility.

Center for Long Term Care Financing
URL: http://www.centerltc.com
DESCRIPTION: This non-profit organization is dedicated to ensuring quality long-term care for all Americans by promoting public policy that targets scarce public resources to the neediest, while encouraging people who are young, healthy and affluent enough, to take responsibility for themselves.

Center for Medicare Education
URL: www.MedicareEd.org
DESCRIPTION: The Center for Medicare Education has an active website, filled with current information designed to help professionals and volunteers nationwide. The site features: (1) Examples of innovative tools and practices from around the country for educating Medicare beneficiaries. (2) Up-to-date listing of publications, websites, and referrals to other organizations. (3) Upcoming events, including training sessions, conferences, and other educational opportunities. (4) Opportunities for professionals to network and exchange information with their peers.

Center on Budget and Policy Priorities
URL: http://www.cbpp.org
DESCRIPTION: The Center on Budget and Policy Priorities is a nonpartisan research organization and policy institute that conducts research and analysis on a range of government policies and programs, with an emphasis on those affecting low and moderate-income people.

Center on Human Policy
URL: http://soeweb.syr.edu/thechp/
DESCRIPTION: The Center on Human Policy is a Syracuse University based policy, research, and advocacy organization involved in the national movement to insure the rights of people with disabilities. Since its founding, the Center has been involved in the study and promotion of open settings (inclusive community opportunities) for people with disabilities.

Challenges and Options for Increasing the Number of Americans with Health Insurance
AUTHORS: Sherry A. Glied
DATE: January 2001
CONTACT: The Commonwealth Fund, One East 75th Street, New York, NY 10021-2692, Website http://www.cmwf.org, Email cmwf@cmwf.org, Phone 888-777-2744, Fax 212-606-3500
DESCRIPTION:

Changes in Home Care Use by Older People With Disabilities: 1982-1994
AUTHORS: Korbin Liu, Kenneth G. Manton and Cynthia Aragon
DATE: January 2000
CONTACT: American Association of Retired Persons, Public Policy Institute, 601 E Street, N.W., Washington, DC 20049, Website research.aarp.org, Phone 202-434-3890
DESCRIPTION:

Characteristics of Nursing Home Residents--1996
AUTHORS: N.A. Krauss and B.M. Altman
DATE: December 1998
CONTACT: HHS Agency for Health Care Policy and Research, 2101 East Jefferson Street, Suite 501, Rockville, MD 20852, Website http://www.ahcpr.gov
DESCRIPTION:

Child Health Toolbox
URL: http://www.ahrq.gov/chtoolbx
DESCRIPTION: The Child Health Toolbox is an online resource to help you measure how well child health programs perform. The measures given are based on sound research evidence. The Toolbox offers tips and tools for evaluating Medicaid, the State Children's Health Insurance Program (SCHIP), Title V maternal and child health programs, and other health care service programs for children.

Children Receiving SSI
AUTHORS: Clark Pickett
DATE: June 1999
CONTACT: Social Security Administration, ORES, 4-C-15 Operations Building, Baltimore, MD 21235, Website http://www.ssa.gov/statistics/ores_home.html, Email Clark.Pickett@ssa.gov, Phone 410-965-9016, Fax 410-597-0151
DESCRIPTION:

Children's Health Under Medicaid: A National Review of Early and Periodic Screening, Diagnosis and Treatment
AUTHORS: Jane Perkins, Kristi Olson and Tonya Pate
DATE: August 1998
CONTACT: National Health Law Program, Inc., 2639 South La Cienega Boulevard, Los Angeles, CA 90034, Website http://www.healthlaw.org, Email nhelp@healthlaw.org, Phone 310-204-6010, Fax 310-204-0891
DESCRIPTION:

Choice Continues to Erode in 2002
AUTHORS: Marsha Gold and John McCoy
DATE: January 2002
CONTACT: Mathematica Policy Research, Inc., 600 Maryland Avenue, S.W., Suite 550, Washington, DC 20024-2512, Website www.mathematica-mpr.com, Phone 202-484-9220, Fax 202-863-1763
DESCRIPTION:

Chronic Care Management--A Toolbox for Action
AUTHORS: Mary Jane Osmick
DATE: June 1999
CONTACT: National Chronic Care Consortium, 8100 26th Avenue South, Suite 120, Bloomington, MN 55425, Website www.nccconline.org, Phone 612-858-8999, Fax 612-858-8982
DESCRIPTION:

Clearinghouse on Welfare Policy and Disability
URL: http://www.welfare-policy.org
DESCRIPTION: x

Commonwealth Fund
URL: http://www.cmwf.org
DESCRIPTION: The Commonwealth Fund is a private foundation that supports independent research on health and social issues and makes grants to improve health care practice and policy. The Fund is dedicated to helping people become more informed about their health care, and improving care for vulnerable populations such as children, elderly people, low-income families, minority Americans, and the uninsured. The Fund’s two national program areas are improving health insurance coverage and access to care and improving the quality of health care services. An international program in health policy is designed to stimulate innovative policies and practices in the United States and other industrialized countries. In its own community, New York City, the Fund makes grants to improve health care and enhance public spaces and services.

Consortium for Citizens with Disabilities
URL: http://www.c-c-d.org
DESCRIPTION: The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.

Construction of Weights for the 1996 Medical Expenditure Panel Survey Nursing Home Component
AUTHORS: J. Sommers, J. Bethel and P. Broene
DATE: August 1999
CONTACT: AHCPR Publications, P.O. Box 8547, Silver Spring, MD 20907, Website www.ahcpr.gov, Phone 800-358-9295
DESCRIPTION:

Consumer Choice and Control: Personal Attendant Services and Supports in America
AUTHORS: Pamela J. Dautel and Lex Frieden
DATE: August 1999
CONTACT: Independent Living Research Utilization Program, 2323 South Shepherd, Suite 1000, Houston, TX 77019, Website www.ilru.org, Email ilru@ilru.org, Phone 713-520-0232, Fax 713-520-5785
DESCRIPTION:

Contemporary Long Term Care
URL: http://www.cltcmag.com
DESCRIPTION: Founded in 1978, Contemporary Long Term Care is the leading magazine for long term care managers. A four-color monthly with a circulation of about 42,000, it is published by Bill Communications, one of the nation's leading business-to-business publishing companies. We help our readers manage their businesses more efficiently, provide more homelike environments for their residents, and keep up with the latest news and trends in key areas including legislation, regulations, patient care, staff management, and revenue sources. We explore controversial issues. And we cover the human side of the business, from the emotionally charged relationships between caregivers and residents to